Resource Library

For people with epilepsy and their families, comprehensive information on the disorder is often a valuable, yet hard-to-find, asset. Living with epilepsy often requires special services to help better understand what epilepsy is and to learn how to deal with it. EFWCP can provide information beyond what is available in physician offices and in most cases the public library.

The EFWCP maintains an Epilepsy Resource Library of brochures, books, reference manuals, videos and professional articles.

The EFWCP’s access to information is also enhanced through a direct computer link to the Epilepsy Foundation of America Resource Library maintained by their national office in Landover, Maryland.


Articles

  • AAN Position Statement on the Coverage of Anticonvulsant Drugs For the Treatment of Epilepsy
  • AAN Tackles Issue of Generic Antiepileptic Drugs
  • AES News
  • An Expert Interview with Robert Gross, MD, PhD
  • Antiepileptic drugs: generic versus branded treatments
  • Antiepileptics — What Price Generics?
  • Are There Potential Problems with Generic Substitution of Antiepileptic Drugs? A Review of Issues
  • Clinical Policy: Critical Issues in the Evaluation and Management of Adult Patients Presenting to the Emergency Department with Seizures
  • Clinical Problems with Generic Antiepileptic Drugs
  • Cost of Epilepsy Higher Than Previous Estimates
  • Doctor’s Ties to Drug Makers Are Put on Close View
  • Effects of Generic — Only Drug Coverage In a Medicare HMO
  • Epilepsy Medications
  • Generic and Brand Name AEDS — Considerations for Clinicians and Patients
  • Generic Epilepsy Drug Switch Tied to Seizures — Switching From Brand-Name to Generic Epilepsy Drug May Prompt Seizure
  • Generic Epilepsy Drugs Not the Same — Patients Warned Switching Between Dilantin and Generic Brands Can Cause Relapse
  • House Bill No. 98
  • Living Well II: A Review of Progress since 2003
  • Living Well with Epilepsy II: Report of the 2003 National Conference on Public Health and Epilepsy, Priorities for a Public Health Agenda on Epilepsy
  • Mandatory Generic Substitution of Antiepileptic Drugs Raises Concerns
  • Members of the Alabama Legislature — Regarding: Epilepsy Patient Protection Bill
  • New Findings in Epilepsy From the 60th Annual Meeting of the American Epilepsy Society: An Expert Interview with Robert Gross, MD, PhD
  • Patients Let Drug Developers Get Profits
  • Prescribing Antiepileptic Drugs, Should Patients Be Switched on the Basis of Cost?
  • Resolution HHS-07-19 Epilepsy Patient Prescription Drug Safety
  • Rite Aid/ Eckerd deal likely won’t be end of drugstore consolidation
  • Senate Bill, No. 119
  • Statement on Substitution of Generic Antiepileptic Drugs
  • Switching to generic drugs may be dangerous for epilepsy patients
  • Talking Points on Texas Senate Bill 409 Re: Generic Substitution of Drugs Used to Treat Epilepsy
  • Targeting Epilepsy: One of the Nation’s Most Common Disabling Neurological Conditions 2007
  • Testimony Presented to: The Pennsylvania Senate Aging and Youth Committee, Public Hearing on H.B. 888,
  • Testimony before the Advisory Committee for Pharmaceutical Science Food and Drug Administration Rockville, Maryland
  • The benefits of a camp designed for children with epilepsy: Evaluation adaptive behaviors over 3 years
  • Therapeutic Equivalence of Generic Drugs Letter to Health Practitioners
  • Therapeutic Equivalence of Generic Drugs Response to National Association of Boards of Pharmacy
  • Treatment with anti-epileptic drugs
  • UCB — Citizen Petition
  • Why Generic Doesn’t Always Mean Cheap
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Videos

  • A Question of Epilepsy
  • An Introduction to the Ketogenic Diet
  • And Life Goes On: Severe Seizure of Early Childhood
  • Because You Are My Friend
  • Diastat Instructional Video
  • Driving & Epilepsy
  • EMS Magazine Part 1
  • EMS Magazine Part 2
  • Epilepsy 101: Information for People with Seizures
  • Epilepsy In The Teen Years
  • How to Recognize & Classify Seizures and Epilepsy
  • I have Epilepsy Too
  • Just Like You & Me: A video about epilepsy
  • Meeting the Challenge
  • Planning for Today & Tomorrow
  • Power to Renew a Life — VNS Therapy
  • Recognizing Seizures: Guidelines for Direct Caregivers
  • School Planning For Children with Seizure Disorders
  • Seizure Disorders & the School I
  • Seizure Disorders & the School II
  • Seizures In Later Life
  • Small Differences
  • Student Electronic Portfolios for Participating in IMP & Transition Planning
  • Take Another Look: Police Response to Seizure and Epilepsy
  • Take Charge of the Facts
  • The Ketogenic Diet? a total commitment
  • The Rest of the Family
  • Understanding Complex Partial Seizures
  • Understanding Seizure Disorders
  • Understanding Seizures & Epilepsy
  • Video From the Workplace
  • Was that a Seizure?
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Brochures

  • All About Partial Seizures
  • Career Support Center: An Online Resource
  • Children & Seizures: Information for Babysitters
  • Communicating with Your Physician
  • Complex Partial First Aid Bookmarks
  • Diastat AcuDial Brochures
  • Diastat Poster Sheet
  • EFWCP — First Aid for Seizures — Red Sheet
  • EFWCP — Spanish Brochure
  • EFWCP — Spanish Coloring Book
  • EFWCP — Epilepsy is What You Have, Not What You Are
  • EFWCP’s Project School Alert
  • Epilepsy in Children: Learning & School Performance
  • Epilepsy in Children: The Teacher’s Role
  • Epilepsy: About Depression
  • Epilepsy: Legal Rights, Legal Issues
  • Epilepsy: Part of Your Life
  • Epilepsy: Questions & Answers
  • Epilepsy: You & Your Child
  • Epilepsy: You & Your Treatment
  • First Aid for Seizures ’ Card
  • Hope Through Research: Seizures & Epilepsy
  • Ketogenic Diet for Epilepsy
  • Managing Seizures: Information for Caregivers
  • Medicines for Epilepsy
  • PA Parent Guide to Special Education, PDE
  • Parent to Parent of Pennsylvania
  • Safety & Seizures
  • Seizures after Sixty: Information for Seniors
  • Seizure Recognition and First Aid
  • Seizures after Sixty: Information for Caregivers
  • Seizures after Sixty: Recognition & First Aid
  • Seizures, Epilepsy & Your Child
  • Take Another Look: Law Enforcement
  • The Child with Epilepsy at Camp: A Guide for Counselors
  • VNS Therapy & Surgery For Epilepsy
  • Women & Epilepsy: Anticonvulsants & Pregnancy
  • Women & Epilepsy: Bone Health & You
  • Women & Epilepsy: Hormones & You
  • Women & Epilepsy: Info Folders
  • Women & Epilepsy: Initiative Brochure
  • Women & Epilepsy: Pregnancy & Epilepsy
  • Your Child: Today & Tomorrow — Information for Parents (Packet)
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Books

100 Questions & Answers about Epilepsy
Author: Singh, MD

A Handful of Stars
Author: Girion

Alice
Author: Flanigan, Sara

Brainstorms: Epilepsy In Our Words
Author: Schachter, Steve MD

Brothers and Sisters; Just for You

Brothers and Sisters; What Affiliates Can Do

Changed By A Child: Companion Notes For Parents Of A Child With A Disability
Author: Gill, Barbara

Counseling Children with Chronic Medical Conditions

Created in God’s Image
Author: Tomko

Does Your Child Have Epilepsy?
2nd Edition,

Don’t Stop the Career Clock
Author: Harkness

Embrace the Dawn
Authors: Davidson

Epilepsy — Patient & Family Guide, 2nd Edition
Author: Orrin Devinksy, MD

Epilepsy A to Z: A Glossary of Epilepsy Terminology
Author: Kaplan

Epilepsy and the Family

Epilepsy: A Guide to Balancing Your Life
Author: Leppik, Ilo, MD

Epilepsy: Frequency, Causes & Consequences
Author: Hauser, MD

Family Connections: A Guidebook for Parents and Children: 14 to 18 years

Family Connections: A Guidebook for Parents and Children: From Birth to 7 Years

First Things First
Author: Covey, Stephen

Free at Last: My Lifetime Battle to Overcome Epilepsy
Author: Lisa-Marie Kinsman

Good Whether or Not

I Can Live with That!
Author: Goss

Keto Kid: Helping Your Child Succeed on The Ketogenic Diet
Author: Snyder, DO

Legal Rights of the Catastrophically Ill & Injured: A Family Guide.
Author: 2nd Edition; Romano, Joseph

Living Well With Epilepsy
Author: Gumnit, MD

Mi Epilepsia Y Yo: Testimonios
Author: Schacht, Steve MD

Pass porter’s Walt Disney World for Your Special Needs
Author: Wills & Koma

Pediatric Epilepsy — Diagnosis & Therapy
Author: 2nd edition; Pellock, MD

Person to Person: A Guide for Professionals Working with People with Disabilities
Author: Gething

Psychiatric Comorbidity in Epilepsy: Basica Mechanisms, Diagnosis, and Treatment

Re-Charting the Course: If Not Now, When? The Second Report of The Presidential Task Force on Employment of Adults with Disabilities

Respite Care: Time out for Families: Affiliates Can Help

Rusty’s Story

Saving Jesse: A Diary of Rasmuseen’s Syndrome

Seizures Free: From Epilepsy to Brain Surgery, I Survived and You Can Too
Author: Chilton

Skills and Techniques for Group Work with Children and Adolescents

Spirit Catches You and You Fall Down

Stedman’s Medical Dictionary
25th edition

Successful Aging
Author: Rowe, MD

Takedown

Teenagers with Epilepsy: A Guide for Adolescents

That’s My Child: Strategies for Parents of Children with Disabilities
Author: Capper

The Brainstorms Companion: Epilepsy In Our View
Author: Schachter, Steve MD

The Brainstorms Family: Epilepsy On our Terms, Stories by Children with Seizures And their Parents
Author: Schacter, Steve MD

The Brainstorms Woman: Epilepsy in Our Lives
Author: Schachter, Steve MD

The Brainstorms: Epilepsy In Our Words — Personal Accounts of Living With Seizure
Author: Schacter, Steve MD

The Epilepsy Handbook: The Practical Management of Seizures
Author: 2nd edition, Gumnit, MD

The Ketogenic Diet: A Treatment for Children and Others with Epilepsy
Author: Freeman, MD

The Nine Myths of Aging
Author: Powell

The Patient Guide to the Human Brain: #1

The Patient Guide to the Human Brain: Diagnostic Procedures: #2

Understanding and Changing Our Reactions to Disabilities
Author: Miller

Unlocking Potential, College and other Choices for People with LD and AD/HD
Author: Taymans, Ph.D.

Views from Our Shoes: Growing Up with a Brother or Sister with Special Needs

Women with Epilepsy: A Handbook of Health and Treatment Issues
Author: Morrell, MD

You & Your Brain: A Child’s Guide
Author: Novartis

Your Child & Epilepsy
Author: Gumnit, MD

Your Child Has a Disability

Your Values, My Values
Author: Pengra

Brothers and Sisters: A Guide for Families of Children with Epilepsy

Children with Epilepsy: A Parents Guide
Author: Reisner, Helen

Family Connections: A Guidebook for Parents and Children: From 8 to 13 Years

Growing Up with Epilepsy: A Practical Guide for Parents
Author: Blackburn, PhD

In Search of a Dream

Issues and Answers: A Guide for Parents of Children with Seizure Disorders Ages 6-12

Issues and Answers: A Guide for Parents of Children with Seizure Disorders Birth to 6

Issues and Answers: A Guide for Parents of Teens and Young Adults

Issues and Answers: Exploring Your Possibilities; A Guide for Teens and Young Adults with Epilepsy
Author:

Lee the Rabbit with Epilepsy
Author: Moss, Deborah

Living Well With Tuberous Sclerosis
Author: Sheffield

Managing Seizure Disorders: A Handbook for Health Care Professionals
Author: Lippincott

Parenting and You: A Guide for Parents with Seizure Disorders

Seizures & Epilepsy in Childhood: A Guide For Parents
Author: Freeman, MD

The Brainstorms Healer: Epilepsy in our Experience
Author: Schachter, Steve MD

When Mom or Dad Has Seizures; A Guide for Young People

A Guide to Understanding & Living with Epilepsy
Author: Devinsky, Orrin MD

The Treatment of Epilepsy: Principals & Practices
Author: Lea & Febiger

Epilepsy: 199 Answers, A Doctor Response to His Patients Questions

The Brainstorms Family: Epilepsy On Our Terms
Author: Schachter, Steve MD

Contemporary Diagnosis & Management of the Patient with Epilepsy, 5th edition
Author: Leppik, Ilo, MD

My Friend Emily: A Story About Epilepsy and Friendship
Author: Swanson

Helping Your Child: Get Ready for School

Helping Your Child: Succeed in School

Chris Plays Basketball
Author: Filipps

Dotty The Dalmatian Has Epilepsy
Author: EFA

My Friend Matty: A Story About Living with Epilepsy
Author: Siravo

Treating Epilepsy Naturally

Additional videos, brochures and books can be checked out by calling the Foundation at (412) 322-5880 or 1-800-361-5885. The Foundation has over 200 publications in its current library. You may also want to check Epilepsy Foundation of America Resource Center.

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