Make Your Voice Heard!

Join the movement and help us fight for the rights of people living with epilepsy

Advocate (verb) — to speak or write in favor of; support or urge by argument; recommend publicly

Advocate (noun) — a person who speaks or writes in support or defense of a person, cause, etc.

People Living with Seizures Need Your Help and We’ve Been Silent Too Long!

Public policy is when the government attempts to address a public issue. Some people think “I don’t understand politics. I don’t know how to get involved.” Others think, “My voice won’t really be heard.” There are many reasons why people do not advocate for themselves. However, public policy advocacy is important because it affects your everyday life. People with epilepsy could be affected by public policy in situations in school environments or on the job, in situations involving public transportation, access to health insurance and even the criminal justice system.

Our goal is to ensure the provision of and access to essential services, the protection of the rights of individuals with disabilities, and to promote the prevention, cure and optimal treatment of epilepsy.

The EFWCP advocates for...

  • Government funding for epilepsy programs, services and research
  • Education and employment rights and protections
  • Patient protections in obtaining and receiving health care services

Do YOU Want to be a Part of the Movement?

As someone who cares about the well-being of people with epilepsy/seizure disorders, we know that you too want to take action to improve the quality of life for everyone affected by this disorder. There are many ways to get involved. The easiest way to become involved with the efforts of the EFWCP is to sign up to be a legislative advocate. Once you are signed up as an advocate, you will receive alerts from the EFWCP on upcoming advocacy issues. That way you can JOIN US IN OUR FIGHT!

Another simple way to make your voice heard and fight for the rights of people who have epilepsy is to contact your legislators. Our elected representatives need to know how epilepsy has affected your life in order to make informed decisions about legislative matters related to disability issues and making funding available for local services. Not sure who your legislators are? Just click here, and type in your zip code or select your county. This will show you who your Senator and Representative for the Pennsylvania Legislature are. If you click on their name, you will find their phone numbers, links to their personal websites, personal information about them, and information about what committees they sit on. To learn more about how to write your legislator, click here.

Share Your Story

Legislators find personal stories from their constituents to be very powerful. Whether you are willing to be an advocate or would like to follow along with what we are doing, we ask that you share your stories with us. JOIN US IN OUR FIGHT! Please send any personal stories to staff@efwp.org. Perhaps you have had your medication switched by your pharmacist without your knowledge, then suffered a breakthrough seizure soon after. Or maybe you have a particular EFWCP program in your area that you love and do not want to see it cut due to a lack of funding. Or maybe you have struggled with your school district in getting your child who has epilepsy the proper education that he deserves. All of these issues need to be put into the spotlight! TOGETHER WE WILL MAKE A DIFFERENCE!

EFWCP on FacebookFollow EFWCP on Twitter