“It’s every parent”s nightmare. Something was wrong. Doctors explained that our son Jacob has epilepsy and that there is no cure. We were devastated. I spent days and nights — tears streaming down my face — just holding Jacob and wondering how on earth we were going to find the strength to help our son. And then it hit me. Tears weren’t going to help but smiles, love and normalcy would. I contacted the Epilepsy Foundation Western/Central Pennsylvania.
Having a child with epilepsy/seizure disorder has a great impact on the entire family, especially parents. It can be frustrating dealing with medication changes, side effects, school issues, and the seizures themselves.
The way a parent perceives the child’s seizures affects the way the child understands them, as well. It is important to help maintain your child’s self-esteem and self-confidence by discussing their seizures openly and answering all questions. Encouraging other family members to learn about and understand epilepsy will help your child feel at ease.
You naturally want to protect your child from certain risks due to their seizure disorder. Children with epilepsy should participate in many activities typical of their age group. Many sports and other after-school events are safe ways to encourage your child.
Families that are open and accepting and build on a child’s strengths can make a positive difference in a child’s life.
For more information or to discuss your child’s needs, contact the Children & Family Services Coordinator at 800-361-5885 or firstname.lastname@example.org.Lennox–Gastaut Syndrome