June 15, 2009
The Epilepsy Phenome/Genome Project (www.epgp.org) is the largest research study ever created to understand what causes epilepsy, which treatment will be effective, and why some families have multiple relatives with seizures. The National Institutes of Health is partnering with major epilepsy centers around the country to collect detailed information over five years to identify the genes that influence epilepsy.
Participation involves donating a blood sample and answering questionnaires. Numerous safeguards are in place to protect the privacy of participants. Participants will receive a small compensation for their time, and are not required to travel to a study center.
EPGP is looking for two types of participants:
1) People who have been diagnosed with epilepsy, and also have a brother or sister with epilepsy.
2) People who have been diagnosed with one of several types of rare epilepsy and both biological parents are willing to participate. These types of epilepsies include seizures due to: Infantile Spasms, Lennox-Gastaut Syndrome, Polymicrogyria, or Periventricular Nodular Heterotopia.
EPGP will help shape the future of clinical care of people with epilepsy. For the project to be successful, it needs to be a huge collaboration among all of the people with epilepsy in our country. If you or someone in your family meets the eligibility requirements, please consider being a part of this history-making research project!
More information can be found at:
Epilepsy Phenome/Genome Website: www.epgp.org
Epilepsy Foundation:
http://www.epilepsyfoundation.org/research/epgp.cfm
Contact EPGP directly at:
Katie McGovern
E-mail: info@epgp.org
Toll-free Phone: 1-888-279-EPGP
Website: www.epgp.org
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